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The celiac connection

Filed under: Regular News — Dyana at 1:01 pm on Wednesday, February 27, 2008

As results would indicate, I have tested positive for celiac. Now, does this mean birdsht caused this or vice versa? As I look back on my history, I suspect celiac was the culprit all along and was what triggered the birdshot. The naturopath I’m working with seems to agree.

A very disheartening experience with my primary care doc, however, left me feeling at first frustrated, then enormously angry. When I said this whole process was certainly an education, his response to me was, “Well, you’re the one that wanted me to test you for this.” And that means what exactly? That if I chose to be in denial about it it wouldn’t be a problem? Nice line of thinking that.

It should come as no surprise that he wasn’t interested in hearing about the naturopath or about all the information I had gained about celiac. And after connecting with many, many people who have celiac, the song is the same. In light of this, I am completely mystified. Why wouldn’t a physician want to work with a patient, as opposed to dictating to a patient like a parent to a child?

It is very clear to me that my body is very sensitive to gluten. After taking it out of my diet then trying it again, there is no denying the very obvious symptoms such as mouth sores or severe joint pain. And then there’s the increase of eye flashing and floaters.

So from here on out, I’ll eliminate all things-gluten from my diet and focus on, hopefully, getting healthy again.

There are, certainly, no dull moments.

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2 Comments »

   Web Admin

March 12, 2008 @ 7:55 pm

Celiac has popped up in relation to my own disease, a cancer of the bone marrow called myeloma. A friend sent this article to me:

http://tinyurl.com/29nuad

Let us know how the gluten-free diet goes.

I agree with you on the unwillingness of your doctor to work with you on this. Sometimes it feels like we’re all out here on our own. Certainly it sometimes seems like we have to know almost as much about our conditions as the medical professionals do.

   Norma Jean Nunn

October 28, 2008 @ 6:05 pm

I took a chance on going to google and putting in the key words celiacs and birdshot together and read your response. I have been diagnosed with birdshot for 7 years now and have only been diagnosed with celiacs since last October (after losing 35 pounds in 3 months and my hair) A simple blood test detected it and I have been diligent about avoiding gluten altogether with positive results. Will wait and see how the eyes go. Have also been on thyroid medication for some 18 years. Interestingly enough, my “aches and pains” associated with fibromyalgia and vasculitis have almost completely disappeared since changing my diet and I feel great! I had a friend of mine get tested several months ago and she came up gluten sensitive as well. I am on “my band wagon” to everyone I know to get tested. Why do not doctors do this testing routinely?

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