Be the change you want to see…

   Web Admin

May 25, 2007 @ 6:09 am

Hi Dyana,

Good luck with your trial. I have been in a few myself. What you’re doing will help others, so you have to feel good about that.

You’re right. Steroids are NO fun. Will you have to take any with this trial drug?

Beth

   dyana

May 25, 2007 @ 7:17 am

Thanks for your comment. To answer your question, two months after I begin the injections of the new drug I’ll be weaned off my current meds. At that time I understand that it will be obvious whether or not I’ve received the drug or the placebo. If I have flares, the docs step in with an intravenous treatment of zenepac and I’m praying that the prednisone gets completely tossed out the window. I’m planning to post on my experiences with steroids and hope to start a dialogue about the drug. It’s been called a miracle drug, I know, but the damage it inflicts at every level is just unbelievable.

   Web Admin

May 25, 2007 @ 3:52 pm

So many people are on steroids that I think more information from a patient’s perspective would be good. What do you do to combat the side effects?

   dyana

May 27, 2007 @ 11:35 am

I posted today (5/27/07) with some comments. By the way, what studies have you been involved in? Did you ever receive the placebo? Did you have a good experience overall?